solor beach photo

Update on The Boy

November 29, 2008

We have all adjusted (or are pretending to) to the new reality that The Boy still has seizures.  Whatever that means.  He hasn’t had any more.  So the clock is now at 1 week 4 days.  We don’t know what the one at school meant.  Don’t know if it was because of the medication change (although that seems like an obvious thing), or overheating during PE, or the shiny silver shirt he was wearing that should embarrass most kids that know better. 

Next week I take The Boy to an MRI.  Then we try to get appointments with the neurologist and neurosurgeon.  I’ll bet that we don’t end up knowing any more after the appointments than we do now.  Our only certainty is uncertainty.  Could be worse. 

Thanks again to all of my friends that help me through all of the bad stuff and help me celebrate all of the good stuff.  There’s so much more good stuff, isn’t there?