I Wanna Know What Bob Marley Knows
Bob said so. Bob said that everythings gonna be alright–not just everything, but every little thing. And I’m going to believe him today. And tomorrow. And if it doesn’t turn out that everything is going to be alright I am going to need to sit down for a minute or two. Most likely it will feel like a punch to the gut. But I’ve been punched in the gut and things turned around. We just dealt with the new information. Always made easier by the reason for this sudden small panic.
So, what the hell am I talking about? Tomorrow my boy has an appointment for an EEG. It’s a sleep deprived EEG because sleep deprivation can increase seizure activity. We are going to, possibly, find out if he really is seizure free or if his medications are just doing their job. The "possibly" part is because it’s about 1 1/2 hours long and so it’s nearly a random sample of what the hell the kid’s brain does except that keeping him up all night should make it a little less random.
I really want the seizures to be over. I really want the seizures to be over. I really want the seizures to be over. I want Bob Marley to know what he’s talking about. But what if there is still seizure activity. Then Bob Marley will just have to work a little harder. I will have to be reminded that nothing has really changed except that I have more knoweldge.
My boy won’t change no matter what we are told by the EEG. My boy will still be doing what he’s doing today. Taking anti-seizure meds three times a day without complaining. Still trying to convince me that he doesn’t need to shower more than twice a year. Fighting with his sisters. Being polite…except when he’s not. Driving me crazy. Making me proud. All the same. He will just be doing all the same stuff with me knowing that maybe it will always be this way. Part great and part worrying about his future.
My boy will most likely take it all in stride. Just like he has from the very begining. It’s all just the way it is for him. I’ve never seen him question any of it. He just acts like everything is alright. Every little thing is alright. He may be more convincing than Bob, but I’ll hear it from anyone that wants to say it.
Oh, we did get the results of the last thing the boy did…the MRI. Everything was alright!
